Lilypie First Birthday tickers

Lilypie First Birthday tickers

Wednesday, August 28, 2013

5 week update

Hi everyone!

I can't believe my little fighters have past the one month mark...it still seems like I just had them...

So both are doing well...

Brayden is finally eating and tolerating it at 2ccs...hope it continues and there is no stricture...he is 1lb 15oz so almost 2lbs! His brain bleed is also resolving so hopefully soon no more of that...

Aiden...his feeds are at 22ccs and he is on full feeds now so that means no more PICC line and will soon be on fortifiers to help him grow...he is currently at 3lbs! Also looks like he will be off his nasal cannula soon...

They both still have heart murmurs which the docs are not too worried about yet and both have issues with apnea and breathing but that's to be expected at this point...

Overall they are doing better then expected and hope they can come home in a couple months...

My cutie pie Caleb is doing well as well...we have been trying to do as much as possible with him...this week took him to Betty Brinn children's museum and to Possibility Playground which is a wonderful playground...will also be taking him swimming for the second time bc of the hot weather we have been having...

Please continue to pray for our fighters that they can continue to grow and heal...please also pray for us as we prepare for them to come home that we can be prepared emotionally, physically and also financially...we still need to get things for them before they come home...

Until next time...

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