Lilypie First Birthday tickers

Lilypie First Birthday tickers

Tuesday, September 10, 2013

7 week update


So our twins are 7 weeks old now!

Here is the current update for them...

Brayden:

He is 2lbs 10oz as of today! He has almost gained a whole lb since being born! I know it may not seem like a lot in 7 weeks but with all that he went through it is...

He is also now eating 17ccs which means full feeds! Also bc they are now being supplemented they are using a electrical pump to slowly give out food...right now 45 minutes to finish the feeding bc of the risk of reflux (which his brother has).

He also has no more PICC line...woohoo! One less thing on his body...makes it easier to do kangaroo care!

Yesterday and today they couldn't hear his heart murmur! So relieved for that!

And finally...he has caught up to his brother on the amount of fluid for the nasal cannula...3/4 liter which means next step is getting the nasal cannula completely out!

Bad news...breathing issues but that is to be expected...

Aiden:

He is at 3lbs 10oz! If you go into Brayden's room then to Aiden's, you would be amazed at how much bigger he looks! I was shocked! Oh and he is 5oz away from being out of the isolette and being in a crib...woohoo!

He is eating 30cc's which is ounce...but bc he is being supplemented with formula he has reflux and causes him to stop breathing which I experienced several times while doing kangaroo care...it is very scary bc you have to kind of give him little pats so that he will start to breathe again and you can tell he is in pain bc he scrunches up his face...there is no medicine they can give them for reflux so they just need to grow out of it...

He barely has a heart murmur...sometimes they can't here it but sometimes it is very faint...

And he is at 3/4 liter on his nasal cannula...

Overall all the nurses tell us they are doing better then expected at their age which would be 33 weeks gestation...these guys should have had 7 more weeks inside :( but I cannot believe 7 weeks has flown and with all that we have to do to get them ready to come home, I am sure it will fly by...hoping there are no more setbacks...

This week to start getting ready to bring them home, I will start giving my guys a bath...then we need to do CPR training at the hospital which is Friday...very exciting stuff...

On a different note I am going to vent a little...this is especially for those who are or will be going through a NICU experience...please bear with me...

First on Saturday I had a bad experience with a nurse that was filling in...if you would like details please feel free to message me and I will tell you...I just want those who have to experience the NICU that as soon as you have a bad encounter with a nurse to feel free to ask for a charge nurse bc they can get you a new nurse on the spot! I didn't know this and waited until the next day to try to talk to a different nurse but I had told the receptionist and she had me speak with a charge nurse right away...that is one thing they don't tell you about...being able to talk to a charge nurse if you have any issues...then you can talk to their boss...they both apologized and told me that if they ever had any issues to call them right away bc we as NICU parents already have so much to deal with that we shouldn't have to lose sleep over that...

Second...I feel as if anything else that happens that is not good, I am going to completely lose it! I just feel on edge...I am sure other NICU parents can attest to this...I don't think I can handle anymore bad news...I have been through 3 miscarriages, having to be on bedrest for 6 months with my cutie Caleb along with weekly shots and tons of doctor appointments and then 13 weeks of bedrest with these twins only for it to not be bc of my incompetent cervix but bc of an infection...I feel as if my body has failed my babies and now my twins have to go through all of this...on top of this I am stressing out bc of all the financial stuff that has to do with doctors and hospitals, etc...why can't they all put it in one easy form every month telling me what we owe? Why make it so difficult?

On top of this? I feel so split...having to go see the twins but also wanting to spend time with my cutie at home...when I am home I feel bad that I can't see my babies in the hospital and then when I am in the hospital thinking about my cutie at home and then as I get ready to leave the hospital not wanting to leave them...

Okay enough of the venting...needed that out not just for me but for those who may read this who is also going through the same thing...just know you are not alone...

Anyways thanks for reading and keeping up to date on my boys...until next time!



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